Upper Canada College’s Fiorini brothers and their parents received the Civic Hero Award from the City of Vaughan last month, and younger brother Laurence will be recognized at the Primary assembly, for work done with Jordana’s Rainbows on Jan. 18.
Jordana’s Rainbows is a charity named after Year 4 UCC student Laurence and older brother and Year 8 student Lucas’ sister Jordana, who passed away two years ago at age 10 from a form of brain cancer called Diffuse Intrinsic Pontine Glioma (DIPG). Since Jordan loved rainbows, the family thought this would be a fitting way to raise money and awareness to battle the disease and memorialize her.
Jordana was diagnosed with DIPG at The Hospital for Sick Children just four months before her passing. Brain tumors are the most common cause of childhood cancer death and DIPG is the worst of these. The cancerous tumor of the brain stem affects children in their first decade of life. Surgery can’t remove it and there’s no drug treatment.
“There is an urgent need for research to better understand DIPG and we as a family want to help with that,” says Jordana’s mother Alison on the SickKids Foundation’s website.
“Her passion for rainbows and all things colourful made developing the name Jordana’s Rainbows easy. Her legacy and her innate goodness to spread positivity and love will continue to shine through Jordana’s Rainbows.”
People can make a donation and learn more about Jordana on the Jordana’s Rainbows website. You can also follow the charity on its Instagram and Facebook pages, where people share emotional stories, inspiring rainbow sightings and social media challenges.
Half of the proceeds from the sale of Jordana’s Rainbows pins, bracelets and Christmas ornaments, available here, are donated to DIPG research through the SickKids Foundation. Some Vaughan businesses have also become involved by selling rainbow promotions in support of the organization.
The Fiorini family has helped raise more than $270,000 for the SickKids Foundation to date.
Donations in honour of Jordana were also used to purchase $6,000 worth of gift cards that were distributed to families at Sick Kids just before Christmas since it was the young girl’s wish that no child in the hospital should go without a present.